In the News
Newspaper & Magazine Articles
- Misdiagnosed: How Children with Treatable Medical Issues Are Mistakenly Labeled as Mentally Ill Read Article in Huffington Post
- She’s Not Crazy: My Daughter’s Struggle with PANDAS
Alamo City Blogy 2017 - Is OCD Connected to Autoimmune Disease in Children?
FX Medicine - Raising awareness about PANS/PANDAS
Read Article in New Haven Register - The Frustrating Misunderstood and Evolving World of PANS/PANDAS
Natural Awakenings-Fairfield - When Parents Don’t Give Up: Elusive Diagnosis for a Mysterious Disorder
RFM Online - Illinois law requires coverage of pediatric autoimmune disorders
Reuters - Illinois To Become 1st State Requiring Insurers Cover Treatment For Childhood Post-Infectious Disorders Pandas/Pans
Linkedin - PANS/PANDAS Cases are on the Rise
Dr. Roseann Capanna-Hodge - Researchers discover brain inflammation in people with OCD
Medical Xpress - Medical Mystery: What made a once-happy child so anxious? Philly.com
- Catching a mental illness: One family’s story
Aleteia - New film hopes to bring awareness to a medical illness that strikes many children
The Citizen - I Thought My Daughter Was Just Moody, But It Turns Out She Might Have PANDAS
Romper - Film Review: My Kid Is Not Crazy
Jayme M Valdez, MA, LMHC - AAP News: PANDAS/PANS treatments, awareness evolve, but some experts skeptical – AAP, March 2017
- Discover Magazine: Hidden Invaders- Infections can trigger immune attacks on kid’s brains, provoking devastating psychiatric disorders
Discover Magazine-2017 - Parents Warn Of Rare Disease Caused By Strep That Doctors Often Miss
Read Article - Special Screenings of PANDAS Documentary
Natural Awakenings Fairfield-2017 - PANS/PANDAS: Trust your instincts & be your child’s advocate
Fairfield County Moms Blog-2017 - A boy and his (service) dog
Altamont Enterprise-2017 - The Causes of Mental Health Issues
The Herald Zimbabwe-2017 - Boy, 13, Takes Own Life On Christmas Eve. The Press Release I Was Not Prepared To Write
Chicago Now-2017
- Girl’s Serious Disease May Have Started with Strep – Delmarva Now-2016
- How My Son was Kidnapped Without Ever Leaving – Huffington Post – 2016
- BMX rider drives through tough competition – East Gwillimbury Express, 2016
- Where IDSA Guidelines Fail, Leading Lyme Doctor Succeeds (Part II) Dana Parish (HuffPo-2016)
- Local kid fights ‘controversial’ PANDAS Emma Kate Fittes – The Star Press-2016
- Lavielle Meets with Wiltonians Advocating for PANDAS Patients and Families. Heather Borden Herve, GMW Editor – Good Morning Wilton, 2016
- A Journey to the Medical Netherworld by Alison Motluk Hazlitt-2016
- The Mystery of PANDAS – Psychological disorder, associated with strep infections, turns children’s lives upside down. By David Frey – Bethesda Magazine – 2016
- To Anyone Who Knows, Loves, Teaches and/or Meets a Child With PANDAS. By Katherine Butler – The Mighty-2016
- PANDAS/PANS What’s the Story-Children, Parents & Practioners Rising to the Challenge by Lisa Wolk-Kilion – Natural Awakenings-pages 38-40 -2015
- Arizona health panel works to raise awareness on pediatric autoimmune disorder. By Claire Cleveland – Cronkite News Arizona PBS-2015
- Can an Infection Trigger OCD? Proposed link between infections and psychiatric disorders is still under review but gaining more recognition, resources among scientists – Wall Street Journal – July 2015
- 5 Things to Know About PANS by Amy Dockser Marcus – Wall Street Journal – July 2015
- Antioxidants help treat skin-picking disorder in mice – Stanford Medicine – July 2015
- Moleculera Labs Receives Grant from OCAST to Develop Assays to Identify Individuals with Neuropsychiatric Disorders of Autoimmune Origin – PR NewsWire, July 2015
- Q & A: Sudden symptoms are first sign of PANS and PANDAS – Stanford Children’s Health – 2015
- Kansas Family Struggles with Rare Childhood Disorder – kmuw-2015
- Infected mind: A rare autoimmune condition spurs controversy, forges new frontiers – Unearthed-2015
- Yes, You Can Catch Insanity-A controversial disease revives the debate about the immune system and mental illness. By Andrew Curry – Nautilus-2015
- Advocating for your child when doctors doubt the diagnosis – Care for patients with PANDAS, a little-known controversial disorder, is limited in tri-state area by Aubrey Nagle – Philly Voice-2015
- New pediatric OCD syndrome features abrupt onset- Expert Analysis from The Psychopharmacology Update Institute By Mitchel L. Zoler – PM360-2015
- Adult PANDAS: Seek and Ye Shall Find – The prevalence of PANDAS in adults is remarkable if one bothers to look! Jory Goodman M.D. – Psychology Today- 2015
- My Son Almost Lost His Mind From Strep Throat: When Melanie’s son John started acting strangely, none of the doctors knew what was wrong, until his school nurse spoke up (Cosmopolitan-2014)
Read More - Little known disorder underscores education needs. By Patricia Rice Doran (Baltimore Sun-2014)
Read More - What is PANDAS? How Is It Different from Autism? Interview with S. Swedo (Autism Speaks Science Digest-2014)
Read More - PANDAS: Our Own Personal Snowpocalpyse in Atlanta. By Christine M. Ristaino (HuffPost Blog-2014)
Read More - PANDAS: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections – A New Diagnosis? (Theravive – 2014)
Read More
- PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus) (ENT Blog-2013)
Read More - PANDAS – a frightening condition, thought to be caused by the common ‘strep throat’ bacteria, whose symptoms can include tics, obsessions, compulsions and anorexia (foodmatters)
Read More - Youthful victim of rare disease looks to spread word about PANS (Warwick Beacon-2013)
Read More
TV SPOTS
- ‘Charlie’s Law’ to Expand Insurance Coverage for PANDAS/PANS Signed Into Law – Chicago 5 (2017)
Watch More
- Medical Mysteries UK – 2016
Website
Video - Henrico mom shares son’s rare diagnosis. – ABC8 (2016)
Read More/Watch Here - The Girl Who Sneezed 25,000 Times a Day – Dr Oz (2016)
Read More/Watch Here
- N.H. Families Fight for Rare Diagnosis Linking Strep to Kids’ OCD – NHPR(2015)
Listen Here/Read More - W5 investigates possible links between common infection and psychiatric and neurological disorders in children – CTV-W5 (2015)
Watch Here/Read More
- Be Healthy: Rare Disease Known as PANDAS – Dr. Prasad Srinivasan – NBC-CT (2014)
Watch Here
- The Kids Who Caught OCD – WMC-TV (2013)
Read More/Watch Here
None
- P.A.N.D.A.S. triggers sudden symptoms in children. Dr. Deborah K Sokol – WTHR (2011)
Watch Here - Saving Sammy with Beth Maloney – The Drs. (2011)
Read More/Watch Here