PANS/PANDAS Legislative News
There is a concerted effort across several states to get legislation passed to mandate insurance coverage for PANS/PANDAS. There are several obstacles including measures put in place to make new mandates difficult to pass. It is important to keep discussing PANS with your local representatives; if it is important to you then it should be important to them.
Advocate for PANS/PANDAS Awareness and Education
It is important to inform policy makers about this vital health issue. Your story is the most important tool you have as a PANS/PANDAS advocate. It helps to forge a personal connection. Use these helpful tips to better articulate your story to elected officials in a clear and powerful manner.
- Be brief and speak plainly. Avoid medical or policy terms.
- Speak honestly and from the heart. Tap into their emotions and pull on their heartstrings a bit.
- Discuss the benefits to your proposal. How will real people benefit from this measure?
- Keep them invested. Include details that accurately put your proposal in motion.
- Maintain a relationship. Thank them for their time and continue to follow-up.
Keep Us Posted on What's Happening in Your State
If PANS/PANDAS legislation has already been proposed in your state, we will post instructions on how you can help support the PANS/PANDAS bill in progress.
So be sure to follow NEPANS on Facebook, Twitter, and Instagram.
If you have any questions or legislative infomoration, please reach out to NEPANS.
DPH – CT PANDAS Advisory webpage
The PANDAS Advisory Council was established based on Public Act 13-187 – An Act Concerning a School Nurse Advisory Council and an Advisory Council on Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections: Public Act No. 13-187
“The Connecticut legislature in June  passed a bill creating a PANDAS Advisory Council to the state Department of Public Health to provide information about research, diagnosis, treatment and an outreach and education program for health care providers for the recognition of and treatment options for PANDAS.”- State Senator Crisco
Read More about Bill creating PANDAS Council to DPH
From CT Legislative Press Releases:
March 1, 2013
Crisco, Representative Megna Convene Connecticut ‘PANDAS-Palooza’ at Capitol
Read More about PANDAS Awareness in CT
May 7, 2012
Crisco Wins Senate Vote for Study of P.A.N.D.A.S. Syndrome, Causes & Treatment
Read More about PANDAS Advisory Council to DPH
SB 37 – Session Year 2016: AN ACT REQUIRING HEALTH INSURANCE COVERAGE FOR PEDIATRIC AUTOIMMUNE NEUROPSYCHIATRIC DISORDER ASSOCIATED WITH STREPTOCOCCAL INFECTIONS.To require health insurance coverage for the diagnosis and treatment of pediatric autoimmune neuropsychiatric disorder associated with streptococcal infections.
Read More PANDAS Insurance Bill 2016
SB 15 – Session Year 2015: AN ACT REQUIRING HEALTH INSURANCE COVERAGE FOR PEDIATRIC AUTOIMMUNE NEUROPSYCHIATRIC DISORDER ASSOCIATED WITH STREPTOCOCCAL INFECTIONS.To require health insurance coverage for the diagnosis and treatment of pediatric autoimmune neuropsychiatric disorder associated with streptococcal infections.
SB15 was voted out of committee. Unfortunately it was recommitted and will be not voted on by the General Assembly.
Read More on PANDAS Insurance Bill Status 2015
2013, 2014, 2015
From CT Legislative Press Releases:
October 11, 2013
State Officials Urge Public Awareness of Neuro-Psychiatric Syndrome Affecting Children – Governor Malloy Declares PANDAS/PANS Awareness Day in CT
Read More about Proclamation of Awareness Day.
For the most up-to-date information, please visit: New Hampshire PANS PANDAS Advocacy Team Page which is run by local New Hampshire advocates.
NEPANS will try and update the website and the NEPANS Facebook page as quickly as possible too.